Living with lymphedema might sound daunting, but it doesn’t have to drastically alter the essence of your daily life. While it’s true that this condition, characterized by swelling in parts of the body due to fluid accumulation, requires some adjustments, many find they can still enjoy a vibrant and fulfilling lifestyle. Here’s a practical guide on how to navigate life with lymphedema, from daily routines to special occasions.
Embracing New Normals in Daily Activities
Lymphedema might prompt you to rethink how you do certain things, but it doesn’t mean stopping them altogether. For example, if lifting becomes challenging, try changing how you engage with activities that require it. Instead of picking up your child, sit and invite them into your lap. If a task feels uncomfortable, it’s okay to step back and find a different approach.
For chores that have become tougher, such as doing the dishes or getting dressed, consider consulting an occupational therapist. They’re a treasure trove of strategies and can recommend gadgets that ease the strain on your body. Remember, adapting your methods doesn’t mean losing independence—it’s about smartly managing your energy and capabilities.
Navigating Mobility and Transportation
While lymphedema isn’t always classified as a disability, it can qualify you for certain benefits like a disabled parking badge or a mobility allowance. These aren’t just perks—they’re necessities that can significantly enhance your quality of life by reducing physical strain and enhancing access to public places.
Dressing Smart: Fashion Meets Function
Lymphedema requires thoughtful choices in clothing and footwear to prevent restricting fluid flow. However, this doesn’t limit you to unattractive options. Seek out clothes that blend style with comfort—think loose-fitting yet flattering tops, pants, and dresses that accommodate compression garments but still show off your style.
Footwear can be particularly tricky, especially if one foot is swollen. Look for shoes with adjustable features, like laces or straps, that offer support without squeezing. Many companies now offer stylish adaptive shoes, so you don’t have to sacrifice fashion for comfort. I recommend looking at Pandere that specializes in footwear for patients with lymphedema.
Maintaining Social Connections and Emotional Health
It’s natural to experience a range of emotions regarding your lymphedema. Feeling frustrated or self-conscious at times is completely valid. Open up about these feelings with a lymphedema therapist; they can often provide support or refer you to counseling services.
When it comes to social interactions, decide how much or little you want to share about your condition. Being honest about your lymphedema can sometimes lead to deeper connections with others, as they come to understand your daily experiences and challenges.
Healthy Eating and Lifestyle Choices
No special diet cures lymphedema, but maintaining a balanced diet and healthy weight can reduce symptoms and improve your overall health. Discuss any concerns about your diet or weight with your healthcare provider, who can offer guidance tailored to your needs. If you need help with your lifestyle choices I offer cooking classes and recipes books to help you.
Traveling with Confidence
Travel is definitely on the table, even with lymphedema. Plan ahead, particularly for long flights or trips to different climates. Wear your compression garments, stay hydrated, and move around as much as possible to keep the lymph flowing. Protect your skin from the sun and stay moisturized to prevent exacerbating the swelling.
Choosing a holiday destination that accommodates your needs doesn’t mean limiting your fun. It just means being mindful of your health so you can enjoy your time away to the fullest.
Living with lymphedema involves learning how to adapt, but these adjustments can lead to a richer, more engaged life. With the right strategies and mindset, you can manage your condition effectively while still enjoying all the activities and relationships that make life worth living. Remember, you’re not just managing lymphedema—you’re living fully, just with a few tweaks.
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About the author
Amanda Sobey is a certified personal trainer, certified nutritionist, and lymphedema coach with over 20 years of personal experience battling lymphedema.
She is the creator of the 16-Week Ultimate Lymphedema Journey program, which combines fitness, nutrition, and self-care to empower those with lymphedema, lipedema, or lipolymphedema.